Job Description

Job Title:

Part-Time Chief Executive Officer (CEO)

Organization:

CNETS (Carcinoid-Neuroendocrine Tumour Society of Canada)

Location:

Remote (Canada)

Employment Type:

Part-Time (Contract or Permanent; ~20 hours/week)

Reports To:

Board of Directors

About CNETS

CNETS Canada is a national, patient-driven, registered charity committed to supporting individuals affected by neuroendocrine cancer through education, advocacy, research funding, and compassionate community support. We collaborate with medical professionals, researchers, patients, and caregivers to advance diagnosis, care, treatment options, and awareness for neuroendocrine cancer across Canada. We provide patient and caregiver support, fund research, build physician and nurse education, advance awareness, and advocate for equitable access to diagnostics, treatments, and care.

Role Summary

The Part-Time CEO is responsible for the overall strategic leadership, advocacy presence, fundraising development, operational oversight, and organizational health of CNETS. This role ensures that the organization remains mission-driven, financially sustainable, and meaningfully responsive to the needs of the NET patient community across Canada.

The CEO will provide leadership to staff and consultants, cultivate relationships with donors, partners, researchers, clinicians, and government stakeholders, and serve as a visible and trusted ambassador for the neuroendocrine tumour patient community.

Key Responsibilities

1. Strategic Leadership & Governance

Lead the implementation of the organization's strategic plan in partnership with the Board of Directors. Provide regular reporting, strategic guidance, and recommendations to the Board for effective governance and decision-making. Identify and assess emerging opportunities, risks, and needs affecting the NET patient community and the organization.

2. Advocacy & External Representation

Serve as the primary spokesperson and public face of CNETS across Canada. Build relationships with healthcare leaders, patient advocacy networks, government agencies, researchers, and pharmaceutical and biotech partners. Represent the organization at events, conferences, patient support sessions, and advocacy engagements. Support national and provincial advocacy efforts focused on equitable access to diagnostics, treatments, and specialized care.

3. Fundraising & Development

Lead organizational fundraising strategy and execution, including donor cultivation, major gift development, grants, sponsorships, and charitable giving campaigns. Maintain strong relationships with corporate partners, research institutions, and philanthropic supporters. Work with staff to develop compelling funding proposals, reporting, stewardship materials, and donor recognition activities.

4. Staff & Operational Oversight

Provide mentorship, oversight, and accountability for staff and contractors, ensuring clarity of roles, priorities, and performance outcomes. Foster a positive, collaborative, mission-aligned culture across the organization. Ensure effective program delivery, financial stewardship, and compliance with applicable regulations and charitable governance standards.

Qualifications

Senior leadership experience within the non-profit, healthcare, patient advocacy, or related sector. Demonstrated success in fundraising, stakeholder engagement, and partnership building. Strong understanding of healthcare systems, patient advocacy dynamics, or cancer-related support environments. Exceptional communication, public speaking, and relationship-building abilities. Empathy, humility, and credibility when engaging directly with patients and families. Experience working with a board-governed organization is preferred.

Personal Attributes

Mission-driven and deeply compassionate. Strategic, clear-thinking, and able to prioritize in a resource-constrained environment. Comfortable in a highly relationship-centred role. Professional presence combined with approachability and warmth.

Compensation

Compensation will be commensurate with experience and aligned with not-for-profit sector norms for part-time executive leadership. Target annual compensation of $100,000 - $120,000/annum.

Job Type: Part-time

Pay: From $100,000.00 per year

Expected hours: 15 - 20 per week

Benefits:

Flexible schedule Mileage reimbursement Work from home
Experience:

not-for-profit: 1 year (required) senior leadership: 3 years (required)
Willingness to travel:

25% (required)
Work Location: Remote